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Leadership Beyond Labels

I'm writing about something that’s been on my mind lately, because it’s showing up again. Recently, there have been comments questioning whether people with disabilities can or should serve in the highest levels of leadership. And when someone questions the capability of any person with a disability, it lands on the entire disability community. The message tells millions of people, “Leadership isn’t for you.” It’s Developmental Disabilities Awareness Month and I can’t be silent. In honor of those I serve, those I care deeply for, those I work with, those I don’t   know, those that have come before me to fight for true equality and belonging… I want to say clearly: this is simply not true. I’ve spent more than thirty years working alongside people with disabilities and if there’s one thing I’ve learned, it’s this: disability does not diminish intelligence, leadership, or the ability to make decisions. People with disabilities learn, communicate, and navigate the world in many di...
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I'm a human being, my life has value!

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How many of you have watched the movie from 1976 The Network?  I haven't, though I keep thinking I should because of the famous scene that is typically called the "Mad as hell" scene. I'll insert it here for you, if you're interested. Be warned, there's a few curse words, including 'hell'.  This scene seems to resonate with me every time I watch it. I can't get away from this one line in particular, "I'm a human being, my life has value."  So many people are fighting to be recognized, to be understood, to be cared about. So many people are fighting so many systems... they're waiting in line for services... services that usually refer to people as a number. Are we taking time to really see and hear them? To show that yes, they are  valued and that the service system is here to help them be bolder, not to take away.  It takes courage to come to the system for help. People want to feel valued and the system can make people feel the o...
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Can we talk about “special needs proms?”

  Can we talk about “special needs proms?” The photos I have seen from a recent event are beautiful. I am genuinely glad the people who attended had a great time. Joy matters . But joy in a separate space does not equal inclusion. A separate prom is still segregation, even when it is wrapped in kindness. If a community can come together to create a big, joyful event, it is worth asking why we cannot create that same joy with everyone, more often, in the actual community. Why is separation still the default instead of inclusion. I also understand the value of disability‑specific spaces. Programs like the Youth Leadership Forum are important because they build identity, leadership, and community among people who share lived experience. These spaces exist to empower people, not to replace access to the broader community. A prom is different. A prom is a community milestone that everyone should have access to. Creating a separate version does not build belonging. It replaces it. I...
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The Unfinished Promise: 50 Years of IDEA and the Fight for Inclusion

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  The Unfinished Promise:  50 Years of IDEA and the Fight for Inclusion   I'm assuming you, the reader, believes in that big American idea: that everyone should have an equal shot… But making that happen? That's always been the real work.   And sometimes, the biggest fights  to help give that equal shot didn't happen in big protests; they happened right over the heads of kids, in the battle to get them a classroom desk.   This month, November 2025, the U.S. is marking a huge anniversary: 50 years of the Individuals with Disabilities Education Act (IDEA). We need to celebrate it but also fight like heck to protect it.   To understand why IDEA matters so much, we should look back. Before 1975, it was totally different. There was no guarantee that kids with disabilities could even go to public school.   Think about that for a second. Millions of kids were legally shut out. They were institutionalized, kept home, or, if they were l...
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Hands Off Special Education!

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We need to sound the alarm on the proposed & recent cuts to the Dept of Education, specifically those to Special Education Services & the core functions of the Individuals with Disabilities Education Act (IDEA). These staffing cuts aren't just budget adjustments; they are a direct attack on the rights and well-being on our nation's children with disabilities. IDEA is a landmark civil rights law that guarantees a Free Appropriate Public Education (FAPE) for every child with a disability. It ensures access to specialized instruction, related services like speech, occupational, and physical therapy, & essential legal protections. I have listened to this poem by  Lederick Horne  a few times since these most recent actions to the Dept. of Education's Office of Special Education & Rehabilitative Services (OSERS). I feel so many emotions like anger , disappointment , scared , & sad . I don't know what to think & barely know what to do.  Decimating the s...
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Another year upon us!

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Happy New Year!  How many times have you heard this so far this month?  I think one thing this time of year and that phrase causes me to do is think about what will it take to have a happy year?  Many times I think we see the new year as a new chance to start something, learn something, etc. Look at gym memberships - they will increase in January as people start getting fit. Why do we choose to put it off and wait until another year? Why not the next month..or next week? Or better yet, the next day? If it's something you want to do or want to achieve, just start.  ...this is all sounding good to me, but yet this year... well, about halfway through the year, something changed. I don't know what - haven't figured that out. Something changed and the momentum I had gained in working out consistently and starting to plan and cook more at home hit a huge wall... a wall I am having trouble getting over. Every day my intention is to do better, but then I find myself disappoi...
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It's game time! Let's go Raiders!

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More joy...  It's almost football time for the RAIDERSSSSSSSSSSSSSSSSSSSSSS!  ⚑ The Raiders first preseason game starts soon, vs the San Francisco 49ers. I'm excited for the season, as I am every year, filled with hope, anticipation, excitement, and nerves. Lots of nerves. We start the year after a disappointing season last year. The Raiders have a new quarterback, having traded their starter for many years to the Saints. I'm not sure they traded for a better quarterback, but I don't think any worse. Their big time running back hasn't signed yet so is missing in action. We have some key defensive players back, but also new folks. I've been a Raider since ... I really don't know. It's been a while though. I always say since I was a little girl. I remember being at a friend's house and "some" football game was on. I don't remember who they were playing, but I do remember the Raiders never quit, coming back to win the game. I proclaimed th...
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Finding My Joy

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Finding My Joy I've realized I need to focus more on joy. Not just doing things that bring me joy, but realizing everything that brings me joy. There's a lot that brings joy to me, but I'm not sure I see it all the time. A quick list of things that bring me joy as I sit here: my family, sitting in my house, watching soccer, writing, even paying bills (sounds weird, but I am happy I have the ability to buy what I want and need)... Today's world can be overwhelming. News of bad things happening around the world can make me feel anxious, sad, angry, drained, upset... all the feelings. Thereare a lot of good things happening, too. I don't have a lot to say in this addition, except that I hope my writing encourages any reader to start recognizing all the joys in their life - the small joys, the big joys, and all the joys in between. They're there, I promise.  Tater Tot is chilling, while I write. 
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Go fly a kite!

Working on enjoying the little things... Since the COVID-19 pandemic and quarantine(s), there have been so many changes in our lives - work, family, play, community, etc. for many of us. My work found itself closing its doors, opting to share a work space when we need it and work from home. This has been different to say the least. I sometimes go use the shared office space every day, but there are times being in my own space that are super cool. The other day... on another windy Spring day in Oklahoma, I decided to try out the kite I'd purchased late last year but hadn't tried it out. The only audio in this video is the wind - and it was windy out there - so feel free to mute and add your own music.  Here's to taking more time to enjoy all that life offers, but I forget.    
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Celebrating family... more joy!

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  I think I didn't realize how lucky I am for the family - immediate with my Mom, Dad, brothers... my brother's families... and their families... and my many, many cousins.  My Dad's family has a large reunion every three years. It first began with us all meeting in the Branson, MO area. I remember as a kid going, enjoying Silver Dollar City, canoing the river, swimming, eating, and more with all the Uncles and Aunts and the many, many cousins. We've since then moved the reunion to different locations. We've grown together, partied together, hugged on each other in places like Williamsburg (VA), Keystone (SD), South Haven (MI), Red River, Pigeon Forge (TN) and many places in Colorado.  These are extraordinary weekends. We just have a lot of fun, enjoying what the places have to offer - together.   Some may be thinking how does family relate to joy?  I mean, many of our family members we see and/or talk with a lot.  But do we really think about the joy ...
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